QUALITY OF LIFE (in spite of spasms)
Before the drugs (medicines)
85%
1. Able
to drive
2. Took
services at
-Srs. of Mother Theresa—Monday
eve.Shallcross
-services at St. mary’s
hosp.—Tues and Thurs mornings,
-Service at Savannah Park on
Sundays
3. Drove to appts, for doctors and physios
4. Shopping---Pavilion, Pinecrest, Knowles, Pick N Pay,
Pinecrest
5. Climb stairs with crutch—no problem.
6. Services and meals downstairs-walk with one crutch
7, Dress and shower self
8. Visit sick people in hospital and at home.
9. Could walk to garage to fetch car and return it. (100
meters)
10. Slept well at night
(Spasms came after sitting or lying down. When you were
busy during the day
You didn’t notice them although they were 24/7)
(Didn’t appreciate my quality of life---nothing to
compare it with…)
After taking the medicine---Oct.1,2019
(a cocktail of medicines, mu quality of life dropped down
to about .05
-i can’t drive
-I can’t climb stairs
-for a while, I needed the food to be brought to
-couldn’t attend Mass
-medicine caused hallucinations—drugged
-still feel the spasms, though less often
-confused—seeing double-----pres p and get x or pres5 and
get 3,
couldn’t communicate either by phone or computer- very
frustrating
--after a week Dr. Bhagwan said to cut the dose in half.
-I want to cut the dose in half again and then ease off
altogether and
Be drug free.
-I shuffle, I don’t walk. I use a 4 legged walker but am
frightened about
Falling—not confident---need something to hang onto (A wall,
a bed,
A table, a chair, a desk, anything, to feel somehow
secure.
In the beginning, my life was eat, sleep, eat, sleep, eat
sleep…not my idea of quality
Of life. It is improving slightly and slowly. I seem to
be always sleepy, especially
After breakfast and lunch.
The medicine is
also causing constipation…but we are dealing with that problem.
Hopefully, by Christmas I will be back in shape. (fingers
and toes crossed and prayer)
I hope to have better news net time. Thanks for all the
moral and spiritual support.
every night Alex and I pray for you. Alex's prayer most often for you is "please, God, help Fr Cas get used to his new body." I can well imagine how frightening, frustrating and crazy making each new iteration of your body has been lately. Please trust though that you are never alone in this. You have a world of dear ones the world over (including my 7 yr old) who are holding you with all the spiritual strength we've got...and all of us are held in the most loving Hands of all. Peace, courage, and love to you! Sabine and the boys
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